視覺障礙學生主要照顧者生活品質影響層面之質性研究

A Qualitative Research on the Quality of Life of Primary Caregivers: The Influences of having Children with Visual Impairments

本研究主旨係以質性研究法探究視覺障礙學生（學前至高中職階段）主要照顧者生活品質影響層面。資料蒐集方式是以重視質性研究嚴謹性指標的可信賴性、可靠性、可驗證性及可遷移性之程序考量，採取「焦點團體」（2場）與縱橫雙向形式之「深度訪談」（4步驟）兩大階段進行。形成初步研究範疇「6大主範疇與29項副範疇」；並從進階釐清核心範疇過程中，探討出視覺障礙學生主要照顧者生活品質主要受「視障子女因素」（3項層面）及「周邊支援因素」（4項層面）兩大面向之相關層面所影響；兩者交叉衍生出「時間限制因素」，嚴重造成主要照顧者在喘息需求、家庭角色失職、就業選擇與收入的限制等層面上的影響亦是不容忽視之相關因素。最後，本研究歸納結果提出四項有助於改善生活品質的具體建議策略。

This study investigated and analyzed the quality of life of primary caregivers of children with visual impairments through qualitative research methods. The research process was divided into two major steps, the focus group interview and the in-depth interview, which put great emphasis on credibility, dependability, confirmability, and transferability for the rigorousness of data analysis. There were 6 main categories and 29 subcategories emerging from the first research outcome, which could be further condensed into two core factors, “conditions of children (3 items)” and “supports from surroundings (4 items).” They significantly influenced the quality of life of primary caregivers of children with visual impairments. In addition, the factor of time limitation derived from the two core factors aforementioned also did severe damage to the quality of life of these caregivers in such aspects as insufficient rest time, failure to assume family responsibilities, limitation of job choices, unsatisfactory income, and so on. In the final section, 4 suggestions were proposed to address these problems.